Fibromyalgia reversal update on the Guaifenesin Protocol 4 years in.

Can you believe it’s been 4 years? I can hardly wrap my mind around it! I was pretty quiet the last couple years of the Guaifenesin protocol, trying to figure out what happened that made me stop clearing. And then trying to figure out why I re-deposited. It was so discouraging I had no idea how to write anything about it. I was desperately looking for a cause.

Well, this last year has been really up and down. To make a long story short: It started out pretty bad with a mapping that showed so much re-depositing of the phosphate deposits that it looked like I was just starting the protocol instead of 3 years in. We decided to up my dose, which is so horrible for a low doser!

Low dosers pretty much clear all the time without a break. So taking a 3rd pill a day was unthinkable. But the alternative was to quit, and I am NOT a quitter, esp not after investing 3 years of my life to this and giving up on the hope of good health? Ha! Not gonna happen.

So, I started taking my 300mg LA/SR Guaifenesin 3 times a day. Knocked me off my feet and back onto the couch. It was so so horrible. The worst was just the wondering if it was even working, after putting myself through so much. Yep, I cried alot. This girl is not afraid to be emotional! lol! Better to just let it out! šŸ˜€

Well, here I sit, in such good health that I am now Fostering twin 6 yr old boys! There is NO way I could have done this a year ago, let alone 4 years ago when I started the protocol and was couch-bound. SO thankful that I stuck it out and did the unthinkable- raise my dose. Please note that I was 3 YEARS in when I raised my dose from my clearing dose! I do not suggest you raise your dose higher than your clearing dose unless you are far enough along. Click this link to learn how to Find Your Clearing Dose.

I am currently clearing my shoulders, which is a deep deposit, going back to when I was little and thought all the kids had crazy stabbing pain in their shoulders when they sat down. These deep deposits clear later on in your cycling, so I know I am making good progress. Yes, my fingers go numb sometimes from the pinched nerves and pain, and yes I wake up in pain at night sometimes, but it’s not like it used to be! NOW, I just think “YES! I am clearing and it’s getting better instead of worse right now!” I take my pain meds, go to the Neurostructural Integration Therapy, do gentle stretches, and rest with the knowledge that soon it will go away an I will feel better than I did before. I am one day closer to being symptom free!! YAY GUAI!

SO thankful right now! <3

Want to hear the rest of my story? Check out this link: My Fibromyalgia Story, and Subscribe to my site! <3

About Christine

I'm a bit of a health nut and not ashamed of it! God, family and Missions are huge passions and driving forces in my life. I have had fibromyalgia for most of my life and am in the process of a treatment that is gonna give me my life back! Join me in my journey to wellness, make some new friends and maybe encourage someone else along the way!
This entry was posted in me and fibromyalgia, Progress Reports and tagged , , , , . Bookmark the permalink.

9 Responses to Fibromyalgia reversal update on the Guaifenesin Protocol 4 years in.

  1. Betty says:

    So happy for your progress:)
    Are gel nails and pedicures ok?

    • Christine says:

      Hi Betty šŸ™‚ From what I understand, the ingredients in the gel nails are fine, but when you go to get them done, you will need to check all the ingredients for the cleansers and lotions that will touch your cuticles and skin!

      So, you can either check all the ingredients, bring your own lotions and stuff, or have a blocking day once every 6 weeks, where you get your nails done your hair done, get a massage and have some tea! šŸ™‚ But I suggest that you DON’T do this, as it really is hard to get back into the habit of staying away from it all. Esp at the beggining when you are still not used to being sal free.

      Hang in there! It WILL get easier though, and these things you have to change or give up, it is SOOOO worth it! <3

  2. Betty says:

    Thanks so much for your answer……I was so concerned as I love my gel nails.
    I see you are interested in missions……I grew up as a missionary kid spoke another language before I could read or write in English:)
    Take care……slowly trying to get better. Started guai 16 yrs. ago and fell off the wagon wow have I suffered for my wrong doing

    • Christine says:

      Yes! I lived in Africa for many years, where were you? What language did you learn? That’s so cool šŸ™‚
      Oh and that’s is a sad reality for many with FM, the protocol is near impossible to do on our own and there is very little support out there! Are you in our Facebook group yet?

  3. Margaret says:

    Hi Christine. Did you find out why you were no longer clearing on your previous dose? I always thought once one found one’s clearing dose, that was that, but based on your story, and some comments on the mailing list, it seems more complicated than that.

    • Christine says:

      Hi Margaret!

      It’s why I stewed on it for so long before writing anything. But I wanted to be honest and open with my readers. I think i found what has slowed me down. Just a few days ago I got a whole slew of test results back and found out I might have hypothyroidism. This can slow everything in your body down, probably slows clearing down too.

      We have almost 1000 members in our group and there have only been 2 others like me where there’s complications, it’s usually just some other non-diagnosed illness that can slow down progress. So no worries!

      Mostly, the people you hear the most from on the support groups are the ones out of thousands who have other issues so it’s a struggle. The rest of everyone is doing so well, busy clearing and getting back to living, that you don’t hear from them! šŸ™‚ That’s a good thing! šŸ™‚

      Have you gotten a battery of tests done from your doctor? There’s a bunch of info on what to get tested for in Dr St Amand’s book that would be good to go through. Not everything is fibro, right?

      Coming to mind most commonly: HG (If you are HG you MUST do the diet.) sleep apnea, cytochrome issues. These are the most common issues that can keep you from getting better.

      Hang in there! Do everything according to Dr St Amand’s book and you will be successful. And we are here to help you! šŸ™‚

      • Margaret says:

        Thanks Christine. I find your story very interesting. I am hypothyroid myself, and on the HG diet, and have been tested for everything under the sun. I and my two kids are on the guaifenesin protocol under the guidance of Dr Melissa Congdon. All of us stopped clearing around the same time. We ruled out blocking, and she advised us of something called the cytochrome effect (I gather the liver clearing the medication out more quickly, and so it being less effective).

        We bumped up our doses, but mine by more, because I was scared of doing too much – the kids’ maps still went backwards while mine appeared to improve slightly, which is consistent with Dr Congdon’s idea of what was going on for us. So now we’re bumping up all our doses again. I was worried that it’s going to a be a case of always having to increase the dose, but now I’m thinking that surely the liver’s ability to clear out medications cannot improve to the point of infinity, so there has to be a stopping point somewhere. According to Dr Congdon, she’s had a few patients with this issue, who started at 300mg twice a day, and ended up on 600mg a day eventually, but so far not more than that.

        I was rather scared to raise my dose, since initially I even cleared on 300mg of mucinex (some of which I gather is not actually long acting). I appreciated reading about your experience of that, it gave me courage as I was lying in bed with muscles cramping like crazy from the raised dose!

        You make a good point about these other effects not necessarily being that common. It’s disheartening sometimes to experience things that are so complicated – thanks for your encouragement!

        And, by the way, thanks also for your posts about how you experience things as a Christian – as a Christian myself, that’s also a big deal for me.

        Great to hear that your recovery got back on track, and I hope it continues smoothly for you!

        • Margaret says:

          And by the way, if you end up needing treatment for your thyroid I’d be interested in hearing about that. And I wonder if in that case you would clear again on a lower dose of guaifenesin… though you may not want to run that experiment!

          • Christine says:

            Lol! I am TOTALLY not into running that experiment! I will probably post something about it in the future. Apparently it can take a few months to figure out thyroid meds and see some positive results. I don’t mind though! After being on the protocol 4 years, I’ve learned patience when it comes to my health šŸ™‚

            Thank you for sharing what Dr Congdon has told you about clearing and cytochromes and low dosers! I’ve been wondering how she and Dr St Amand respond to this type of situation, I imagine it happens more often than we hear about. Esp with all these people not getting mapped and not knowing they aren’t clearing any more!

            It used to be so simple! Stay sal free, stick to your clearing dose for the rest of your life. easy peasy. not so much any more! I am so glad that my story is not the norm, I think people wouldn’t be able to face this kind of story all the time. I have started to really encourage people to see a mapper if at all humanly possible. Just once a year would do it.

            Hang in there and keep in touch sister! I love to hear other Christians in this journey too, such an encouragement <3 blessings on you!

Leave a lovely comment! I read and respond to all comments here and love to hear from you! <3