Get your doctor involved in the Guaifenesin protocol! here’s how

OK, so Chapter 7 of Dr St Amand’s book, “What Your Doctor May Not Tell You About Fibromyalgia” tells us all about how to get our doctors involved with the Guaifenesin Protocol. I SO wish I had remembered and processed that part of the book enough to do this. At the time, I was far too sick to brave talking to my doctor about it, who had been telling me he, “didn’t know what to do with me.” UGH.

Anyways, this is for those of YOU who are BRAVE and have us to back you up and give you support to make this happen!!

Click this: For a list of doctors and mappers we know of who support the protocol.

1. So, you need to get the battery of tests done to ensure you indeed DO have fibro, that your symptoms are not something more life-threatening.

2. Ask your doctor if he would read: the paper by Dr St Amand on the protocol, written for Doctors (have this with you when you go to the doctor)
Ask him is he is willing to walk with you through this treatment you are convinced is going to work. If he is not interested, MOVE ON! You need a doctor who will support and understand what you are trying to do!
If he is interested,
Ask him if he will give you a prescription for Guaifenesin. For many, this will save you some $$.
Ask him for a referral to a Rheumatologist, massage therapist, or chiropractor who is open minded and interested in learning how this protocol works.

3. When you see your rheumy, chiropractor or massage therapist, bring info on mapping, found in the book or on www.fibromyalgiatreatment.com

Ask them if they would be willing to learn more on being a mapper for fibro in your area (and likely the only one, thus insuring they have many more patients! 🙂

The goal of your first visit with him/her is to see if they can feel the lumps on your left thigh. If they can’t, you need to find someone who does. This is a good starting point to help you find your clearing dose! Otherwise, stick to your journal for finding your clearing dose. 🙂

If they are super interested and want to get trained, this is AWESOME! They will need to watch the DVD from fibromyalgiatreatment.com and preferably, be trained by Dr St Amand! Then they can do a full body map for you 🙂 Bring a clear map, so they can map you and indicate on the caricature where your lumps and bumps are. It’s going to be a long process for you to find someone who is interested enough to be trained this way, just to warn you!!

4. Get copies of that map to bring to your doctor, along with your symptom journal showing him how you are struggling through.

5. stick to the protocol

6. get re-mapped after your one month on either 300mg bid or, if symptoms not increasing, on 600mg bid for one month. Click here for: finding your correct Guaifenesin Dosage. This will tell you if this is your clearing dose, by the fact that your left thigh will be clear. YES! 😀

7. Make an appointment with your doctor again and show him your map and symptom journal, discuss your symptoms and how you are managing, discuss your other meds if you are on them, and how to slowly go off them when you no longer need then ’cause you’re feeling so AWESOME! 😀

8. Make yearly appointments to see your mapper and your doctor, to keep him informed on your progress and how well you are doing, and you just MIGHT convert another doctor to help thousands of other patients he will likely have with fibro!

9. Don’t forget to let us know about your doctor and mapper so that we can refer him to other fibro patients wanting to start the protocol!! 🙂

Click for more info on: the Guaifenesin Protocol and getting started!

About Christine

I'm a bit of a health nut and not ashamed of it! God, family and Missions are huge passions and driving forces in my life. I have had fibromyalgia for most of my life and am in the process of a treatment that is gonna give me my life back! Join me in my journey to wellness, make some new friends and maybe encourage someone else along the way!
This entry was posted in me and fibromyalgia and tagged , , . Bookmark the permalink.

6 Responses to Get your doctor involved in the Guaifenesin protocol! here’s how

  1. Dana says:

    Hello Christine,
    I am so grateful I found your blog. You have an immense amount of information here!
    I, too, have had fibromyalgia for most of my life. I can trace symptoms back to when I was 10, but now you mention some things, I had kidney issues as a young child…
    So, at very least 40 years of suffering, at 2 months/year, 180 months? That IS daunting. that’s 15 years!
    However, I don’t have a choice, as I see it.. I can work towards getting better, or slowly die in a long, painful manner. I now have hope.
    I will have unique challenges, as I live in central America, and have to order my guaifenesin online, and then have it sent to me. Plus, my only support (aside from my dear Honey) will be online as well.
    Yikes! Wish me luck…

    • Christine says:

      Hi Dana!! 🙂 thanks for your comment!

      Yes, for complete reversal, back to long before you ever had fibro symptoms, that’s how long it will take. But you only need to calculate back to when your fibro hit you hard enough that the symptoms knocked you off your feet.

      For me, I had symptoms since I was a child, but they didn’t really nail me till about 20 years ago. I’ve been on the protocol for 6 years, but with some blocking and issues with cytochromes, I struggled to find my clearing dose. But even with all the ups and downs, TOTALLY WORTH IT! I felt an improvement at about 18months. Things just started to get better and symptoms just started to disappear!

      Hang in there, HOPE is huge! Make sure to keep a symptom journal to help you note your progress so you can find your clearing dose. Are you in my fibro buddies group on Facebook? There’s a link on the right side of my site here. It’s Green 😀

      • Dana says:

        Thank you, Christine. You are an inspiration.
        Yes, I just joined last Saturday. It feels a little funny posting just yet, because I won’t be able to start until my stuff gets here, but I will join conversations if I can help or have questions…
        About getting my dr. involved;
        Can I find the physician sheet in Spanish?
        I’d really like to get my doctor involved 🌻

        • Christine says:

          aww you are very kind <3
          As far as getting it in SPanish, did you try using Google translate? It's not perfect, but might be close enough? We are working on translating alot of my info into French, but it takes SO much work! If you'd be willing to do some of my info into Spanish, let me know and I'll totally work with you! My suggestion is to use Google Translate and then just edit it for things that need some tweaking.
          SO excited for you to get your doctor involved in this!!

          • Dana says:

            Oh, believe me, I know how hard doing translations can be!!
            And my Spanish is not so great. Google translate would do a better job, but my daughter has a degree in translation, so I’ll have to ask her to do it for me. Medical translations are the hardest, she says, and she’s been off baking bread for the last two years, so it will take some convincing…
            If I can get her to do it, though, I’ll be happy to share 🌻

        • Christine says:

          That would be fantastic, thank you!! And what a great help and resource to so many, I’m sure!! <3 I wish there was some money to be made at these things since I know it is very time consuming. For me, I just want to see people get better and not live in a comatose state from all the pain meds, etc. It gave me something useful to do when I was too sick to get off the couch too! 🙂

Leave a lovely comment! I read and respond to all comments here and love to hear from you! <3