How to live with Fibromyalgia Fatigue and Chronic Fatigue Syndrome (CFS)

Fatigue is just such a real part of our lives, it’s like eating supper. You just have it. But what does it MEAN to a person with it? How does it affect our lives?

Think of it like a bank account. You have a certain amount of energy for a day. When you draw from that account, it diminishes until it’s gone. When you over-do it and draw past that amount, you have a debt that WILL be paid tomorrow, and the next day. Depending on how far along you are in this.

I remember when My Fibromyalgia started to hit me, I was running regularly. 30-40mins about 4 times a week, and LOVED it! It actually HELPED with my energy. When I didn’t run, I felt sluggish and yucky.

Fast forward a year, and running was ALL I had energy for. When I ran, nothing else would get done in a day. Showering was all I could do. I started running less and less time. Still not understanding that I was actually sick, I decided to start small again, start at just 5 mins running and work up from there. I never got passed 6 minutes. I was be nauseous and dizzy, get a fever and have to lay down for the rest of the day. Still not understanding it was the running, I kept at it- that’s why I got all the way to 6 minutes of running! haha! I got terrible infections (yes, plural infections) from running that time. Resting wasn’t enough.

I was drawing from an empty energy account.

Over the years I have tried various times to start up my exercise routine again, only to be met with infections and illness. Check out this post to help with this: Exercise- how to rebuild energy without crashing- guest post by Dr Melissa Congdon

Now I know. I do a little. Rest. Do a little more. Rest. Evaluate every day using my symptom Journal how I did the previous day and see if it was enough/not enough.

You see, we have these things called ATP and mitochondria that gives us energy and get used up by illness. when all y our energy is busy fighting off the illness all over your body, you have no energy to be active. The less you do each day, the less you will be able to do tomorrow. It is SOOOO important to keep doing what you CAN do to keep up the little ATP and mitochondria that you have. Thus, using a symptom journal everyday to be sure I do enough, but not too much. I now have a cleaning schedule. To do a SMALL amount every day. Check it out: How to Get the house Clean with Fibromyalgia.

YOU ARE NOT LAZY, you are SICK!

Be encouraged friend! Share with your loved ones the bank illustration, Be honest with them about what you are doing when you over do it, and how that affects you. TELL them your symptoms when you over do. Remind them of how very much you WANT to do everything they can do, but you will pay for it.

OK, now after all of that about having so little energy, I HAVE to tell you what I am doing to re-gain my health. Little by little I am doing MORE every day and getting my health back. You can too, and I don’t get paid to share this with you, in fact, this protocol is so cheap, you will be frustrated that you didn’t hear of it before. Please meander over to my post on What is the Guaifenesin Protocol in my Own Words. and let me know your thoughts, questions, concerns, I am here to help you! for free! <3

I have a lovely friend with fibro and CFS who has a website and book to help people through this, totally check it out! Her name is Chantal Hoey Sanders 🙂 http://www.chantalhoeysanders.com/Chantals_Web_site/Welcome.html

Check out this post! Exercise- how to rebuild energy without crashing- guest post by Dr Melissa Congdon

Click for complete list of: Frequently Asked Questions (FAQ) about the Guaifenesin Protocol and Salicylates

Linked up at: Time Warp Wife  /  Growing Home  /  New Nostalgia  /

About Christine

I'm a bit of a health nut and not ashamed of it! God, family and Missions are huge passions and driving forces in my life. I have had fibromyalgia for most of my life and am in the process of a treatment that is gonna give me my life back! Join me in my journey to wellness, make some new friends and maybe encourage someone else along the way!
This entry was posted in me and fibromyalgia and tagged , , , , , , . Bookmark the permalink.

12 Responses to How to live with Fibromyalgia Fatigue and Chronic Fatigue Syndrome (CFS)

  1. Marilynne Rowland says:

    I have such a tough time thinking I am lazy on those days I cannot do as much! My wonderful hubby says it is not even in my nature to be lazy, but it still gets to me. I think for 10 years I must have been drawing on that account until I finally quit work 5 years ago. The Quaifenesin Protocol seems overwhelming to wrap my head around! I have got to do something else as Obama Care is already hitting us. Our insurance has dropped my fibro doctor and my chiropractor so now I pay full amount which includes monthly testing due to drugs. My expenses jumped $500 per month!!

    • Christine says:

      oh my goodness Marilynne!!!
      That is so expensive! I used to be paying just under $1000.00 a month for my natural remedies and naturopath too 🙁 It’s so CRAZY.

      Yep, I know what you mean The protocol is alot to take in. I suggest getting the book by Dr St Amand to start with and go from there. If you never do the protocol, at least you will understand more about what fibro is and does and why! 🙂

      The nice thing about the guaifenesin is that it’s so cheap!! I now pay $20 a month for my stuff. CRAZY eh?!

      • Marilynne Rowland says:

        It is crazy since that is just those 2 doctors not counting the natural protocols I follow. My acupuncturist gave me her family discount since I go very week. Having had this stuff of most of my 62 years, like you I have done my own research but not read this book. Actually at one point, hubby did all the reading as it made me feel worse!! Total empath! I am so much better today than 5 years ago due to the atlas orthogonal chiropractic work and the acupuncture. Lost 65+ pounds in the last 2 years and walk 15-30 minutes most days. I would love to get off the meds so I will get the book and go from there. Thanks for your blog! It is a big help, but I do not know how you do it! God bless you and your family!

        • Christine says:

          You are so blessed to have such a kind hearted husband! I have a hubby like that too thankfully. I don;t know how I would get through this without him! He’s truly a blessing from God.

          I am SO happy to be a help to anybody! It makes being so sick for so long have purpose.

      • Marilynne Rowland says:

        My oldest daughter also has fibro!! She is 33. Her symptoms can be very alike and very different than mine, usually at different times. She has had to delete gluten from her diet.

        • Christine says:

          When you read this book, Dr St Amand explains all about the genetics of this disease. VERY high percentage of our kids have fibro also. I am excited to hear your thoughts on this book too! If you are like 99% of the people who have read it, you will need a Kleenex box beside you. Don’t worry, it’s a HOPE-FULL cry! 🙂

  2. HI Christine, Great to meet you here. I found you through faithful bloggers. I am into health big time too. This was fascinating to read of your journey with fibromyalgia. I’m so glad you got it all figured out. I know that rest and nutrition is very key. I used to be a missionary in Ethiopia and Ghana so we have a lot of common interests. Blessings, Amy

    • Christine says:

      oh excellent! great to meet you Amy! 🙂
      How long were you there for? I miss Africa SO much some days, more so during our long cold winters here! haha! 😀

  3. Jo says:

    Hi Christine… reading this post really hit home for me. I’ve been sick with health issues and fibro for a few years now and it only gets worse. The one thing I continued to hear for so long was “You’re lazy” and it got old real fast and hurt me inside because i’m NOT lazy! As you said it, I’m sick. I hate that people judge you but they dont seem to care about your health problems. My family would judge me all the time because i looked fine on the outside yet, I couldn’t do much. They really thought I was being lazy. It hurt. Today though, I don’t get that as often as I used to. I would never wish this illness on anyone but i just wish my family and friends could really try their best to understand that what I have is not a joke. It’s very tiring, painful and constant. =(

    Thank you for a wonderful read though … have a great weekend.
    Hugs,
    Jo

    • Christine says:

      ahhhh, Jo, your story is so much like thousands of others too. You are not alone in this unfortunately. 🙁 Just keep being your honest self and people will begin to believe you. But they will forget, so you have to remind them! The normals are kinda like us that way- with forgetfulness! hehe! 😀

      I too would never wish this on anybody, but it sure does help to have people to encourage a help us when we’re down!

      Thanks for stopping by, and let me know if there’s anything I can do for ya <3

  4. I’ve returned to the Guai Protocol after a year break. I must say that my health appeared to get worse. I’m really upset about not drinking tea, AGH!! I do so love a nice cup of tea in the morning. Bless you Guaiers’

    • Christine says:

      oh yes! That’s what we look for! We gotta get worse before we can get better! What is your dose? How long were you on it before you took your break? Blessings back at ya! 🙂
      Skipping tea was a big deal for me at first too, but it’s a small price to day in return for good health and ability to live life again!! 🙂

Leave a lovely comment! I read and respond to all comments here and love to hear from you! <3