Pediatric Fibromyalgia

Pediatric fibromyalgiaHere’s some info to get you started in understanding what your kids are going through. I am not a mother so haven’t gone through this experience myself, but I have several friends who are and have shared info with us to help out!

I have a dear friend who is AMAZING with the Guaifenesin Protocol and is a Pediatric Doctor, she can treat both you and your child! Check out Dr Melissa Congdon! You can have a free 10 minute phone consult with her too! Subscribe to her blog so you dont miss all the helpful info she posts weekly. Here’s her contact info:

Melissa Congdon, MD, FAAP
Fibromyalgia Medicine for Children & Adults
www.melissacongdonmd.com

500 Tamal Plaza, Suite 507
Corte Madera, CA 94925
PH: (415) 927-0600
FAX: (415) 381-8892

Here’s another post to check out: Salicylate Free Baby Care and DIY ideas

Make sure to read Chapter 14 on Pediatric Fibro in Dr St Amand’s book called, “What Your Doctor May Not Tell You About Fibromyalgia” or get your hands on his book, “What Your Doctor May Not Tell You About Pediatric Fibromyalgia

And go on over to Chantal Hoey Sanders website too, she has excellent info there and has children of her own with fibromyalgia!

Quote from Elizabeth at our Facebook fibro buddies support group :

My best advise is don’t ASK the school if they will make accomodations, TELL them your child needs these accommodations. ASK the teachers if there are things in the classroom about your child they notice that could help your child succeed. They are the ones with your child and they might notice something or have an idea to boost your child’s learning power. Don’t hesitate to reevaluate it if something isn’t working or there is a change in your child’s needs. Heat zaps my daughter. She is prone to dehydration like me. She has a teacher that is reluctant to let her fill her water bottle during class time, but does because he knows she needs to drink or she will be sick. This is something we added in so he couldn’t tell her no. (He is concerned other students will want “extra” passes too and HIPA prevents him from telling the other students WHY she gets extra passes. SO far, none of the kids care.)

In the USA the office should have the 504 form which you fill out and return to school.

http://www.ncld.org/students-disabilities/iep-504-plan/is-504-plan-right-for-my-child

http://www.pacer.org/publications/adaqa/504.asp?gclid=CMH6yt77hb4CFcqUfgodUQYABg

http://kidshealth.org/parent/positive/learning/504-plans.html

In Canada, the IPP is comparable to the IEP in USA.  Countries have different regulations, this is a start.

Hope that helps you out! Keep in touch if you have any questions and feel free to contact any of the people I mentioned, they are wonderful people, inside and out 🙂

Click this link for more: Frequently Asked Questions (FAQ) of the Guaifenesin Protocol by me!

About Christine

I'm a bit of a health nut and not ashamed of it! God, family and Missions are huge passions and driving forces in my life. I have had fibromyalgia for most of my life and am in the process of a treatment that is gonna give me my life back! Join me in my journey to wellness, make some new friends and maybe encourage someone else along the way!
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4 Responses to Pediatric Fibromyalgia

  1. Jen Fuller says:

    Just an FYI, in the US, generally a 504 requires a doctor’s note and a meeting with the school (usually includes the nurse, psychologist, teacher, guidance counselor and admin.) to determine eligibility and what should be in the 504 plan. It is definitely something you want to do with the school because often the have ideas that will help. It is not just a form that you can go pick up in the office, fill out and return.

  2. Rebecca Hicks says:

    I could not get my son diagnosed with fibromyalgia before our 504 meeting in order to make him eligible. But I was able to get him a chronic fatigue diagnosis so we worked with that. Keep your mind open during this process because you may need to work a little magic within the system! Also, the school is making us get a new diagnosis every 6 months in order to allow for medical withdrawal on classes he “failed” due to his illness.

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