Update on my Fibromyalgia journey on the Guaifenesin Protocol

So, I have learned something new about the Guaifenesin Protocol and being a low doser!

Do you remember in school, learning Grammar, and there’s all these rules. THEN there’s the millions of exceptions to the rules to make you wonder why you learned them in the first place? Well, this is NOT what I’m talking about! LOL! πŸ˜€

For such a large percentage of people with fibro, the Guaifenesin Protocol is so simple: get sal-free, dosing: take 300mg twice a day for a week, no change so increase to 600mg twice a day for the rest of your awesome life as you get better and better. Yep, it really is that simple!

SO, what is with all the horror stories you are hearing like mine, where we just can’t seem to get it figured out? Well, those of us in the puny percentage where the protocol is a little more complicated… we write blogs, talk alot and start support groups! haha! So EVERYONE knows our stories instead of the thousands of others who are just going along getting better and better and busy living their lives, quietly saying nothing about the life change they have experienced!

But this is MY blog and MY story, so you’re going to hear about some possibilities of what could happen, if you are one of the puny percentage that could be like me πŸ™‚

Go back to the beginning of my story if you want it all. Suffice it to say, I started off on the right foot, stayed on that awesome right foot, but we have learned some things since then. I found my dose as I should, it was confirmed by a map by a trained mapper, showing my left thigh cleared after one month on 300mg twice a day. That’s called a Low Doser.

Fast forward 3 years and I was no longer clearing, so added in another 300mg so I am now taking 300mg three times a day.

Today, all my fibro symptoms are back in full force again. I am obviously not clearing, I don’t need a mapper to tell me this.

Apparently, our trained and awesome mappers like Dr St Amand, Dr Congdon and Cheryl Kowalewski are finding that some Low Dosers have to up their dose to clear! But, they have seen that you pretty much stop at 600mg twice a day if you’re a low doser. You don’t have to continue to increase your dose every year for the rest of your life or anything πŸ™‚

There’s this thing called Cytochromes. Have you heard of it? Basically, from my non-medical-brain, it’s something in our bodies that destroys intruders, or anything it thinks might be an intruder. The problem with cytochromes is that they can destroy our medicines in some people, because they ‘think’ the medicine is an intruder. Esp people who take alot of medicine and vitamins, etc. They are more likely to have this problem.

Here’s a quote from a RN in training friend of mine Elizabeth πŸ™‚

Cytochrome issue: For some reason (the mechanism of action isn’t fully researched) when we over load our bodies with a nutrient in pill form our bodies will see this as an invasion of a foreign substance. Cytochromes will come along and prevent our bodies from absorbing it. It can also effect the absorption of other substances taken with the supplements that the cytochromes are protecting our bodies from.

So, this is what we are pretty sure is going on with me. I will be mapped in a month to see if I need to up my dose to the 600mg twice a day. And yep, it’s probably going to make me feel as awful as it did 4 years ago when I started the guai, but it shouldn’t take as long to feel better! So it’s totally WORTH it! πŸ™‚

So there you have it. From a non-medically trained person! I hope this helps you in understanding a little bit more about the Guaifenesin Protocol, and maybe even encourage you to give it a go if you have fibromyalgia! I’m here to help and love to hear from my readers, so leave me a comment <3

Want to know more? Check out my post and audio on what fibromyalgia is and how the Guaifenesin Protocol works by me! πŸ™‚

About Christine

I'm a bit of a health nut and not ashamed of it! God, family and Missions are huge passions and driving forces in my life. I have had fibromyalgia for most of my life and am in the process of a treatment that is gonna give me my life back! Join me in my journey to wellness, make some new friends and maybe encourage someone else along the way!
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26 Responses to Update on my Fibromyalgia journey on the Guaifenesin Protocol

  1. Barbara Uhrich says:

    Hi Christine, I’m a newbie to the FMS society. I sent you an email as an intro so I can join on FB, still pending. I am on so many meds for depression, anxiety, insomnia (3-4 hrs per night), for post brain injury (from a roll-over car crash), arthritis (not RA) and of course PAIN and severe almost constant migraines, thyroid and cholesterol. The Cytochrome issue is a concern for me, but I think I have finally found a doctor who is not afraid to say the word Fibromyalgia, God forbid we upset the insurance companies! I’m lucky to a an expert mapper with decade of experience and I just started going to FMS support group. So now it’s just the matter of changing my entire diet!

    • Christine says:

      Hi Barbara! Yes, I got your email, thank you! I will be letting in new members to the group on Wed πŸ™‚
      How blessed you are to have a good mapper!!! Who do you have? We always like to hear of new mappers too, so let me know and I can add her to our list if we don’t have her already πŸ™‚
      Your diet is something you can wait on. We advise to do either the Guaifenesin dosing, or the diet. Not both at the same time. They both affect your symptoms and you will need to know what is what as you try to understand cycling and clearing and figure out your dose.
      Have you read the book by Dr St Amand yet?

      • Barbara Uhrich says:

        Hi Christine: My mapper is Togi Kinnaman here in Colorado Springs, CO. She has been mapping for 20+ so you probably have her on your list. She is teaching her son, who is a RMT, because of her RA is so bad. Sorry I forgot his name. So hopefully he will be able to pick up the flag and run with it. No, I haven’t gotten Dr St Amand’s book yet, I know they have it at the local book stores, just waiting for some money. Went to my first Fibro180 meeting with Becky Johnson on Saturday. WOW! Lots of info to take in, but I have been doing a lot of reading on the websites provided. I am seeing Dr George Jouetersonke. Two pages of blood lab results came back normal accept the ALT which measures muscle damage, it is very high, no surprise there. I’ll be seeing Dr J next week and I presume he will start me on the Guaifenesin. I’m starting with a hypoglycemic diet, to cut out sugar and increase protien. Everything has sugar added!! Looking forward to being on FB group!

        • Christine says:

          Good job! I’m excited for you!
          Did you look at your local library for Dr St Amand’s book? Most people can find one there until they get their own πŸ™‚ You are seriously going to wish you had gotten your hands on his book sooner. It’s totally life-changing, even if you never did the protocol, you would know what’s going on in your body! <3

          Oh my gosh yes! The diet is a huge change! As I said before, if you start the diet now, you will need to wait to start the Guaifenesin protocol. You want to do one or the other, at least a month apart.

          You can start working on your symptom journal now too, it's a must for everyone on the protocol <3

          • Barbara Uhrich says:

            I can get the book! My electric co gave me a credit for paying on time for 2 yrs! How weird is that? Little miricles.

        • Christine says:

          awesome news re the book!!! You are going to LOVE it!! <3 let me know how it goes, and have some Kleenex handy, I cried alot reading it lol! Tears of joy and shock. To finally have someone totally get it is priceless <3

  2. Christine says:

    Greetings from Minnesota. I’m gathering information and looking forward to starting the Protocol. I’m wondering if I should have any concerns about spending time at the barn with my horse. As you can imagine, I’m surrounded by various “grass” plants in the form of Hay and pasture grasses and who knows what in the dirt. Thank you so much!!

    Christine

    • Christine says:

      Hi Christine! πŸ™‚
      I don’t think you need to worry about hay, it’s dry, so no plant juices will get on you. If you’re rolling around in cut grass however, you will block! lol! πŸ™‚
      If you are handling fresh cut grass, you will need to wear water-proof gloves. easy peasy πŸ™‚ and don’t worry about dirt πŸ™‚

  3. Anonymous says:

    There is a book I read a long time ago that you might find interesting. This lady devoted her whole life to the study of nutrition. “A Cure for all Diseases” by Hulda Clark. It was about food allergies and making your own shampoo and keeping cleansers in your home to a minimum and other information pertaining to things discussed on Fibro Buddies.

  4. Pamela says:

    My comment is the one above – I hit the wrong key, it is under anonymous.

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